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Re: OT - Motor Neuron Disease


  • To: ukha_d@xxxxxxx
  • Subject: Re: OT - Motor Neuron Disease
  • From: geraint@xxxxxxx
  • Date: Thu, 02 Aug 2001 20:42:56 -0000
  • Delivered-to: rich@xxxxxxx
  • Delivered-to: mailing list ukha_d@xxxxxxx
  • Mailing-list: list ukha_d@xxxxxxx; contact ukha_d-owner@xxxxxxx
  • Reply-to: ukha_d@xxxxxxx

Hi Brian,,

i'm no medical expert either, but i found the following information
which may shed some light on what the disease does, and therefore may
help to work out what is available to make life easier...

http://www.iol.ie/~killeen/stevemnd/links.htm

you could also try :

http://www.disabledworld.com

(a colleague at work actually writes the site for his uncle, and I
have found this useful for finding help for my father who suffers
with polio. If you can't find info, then e-mail them direct, and they
will find out more info for you, it's run for zero profit, and they
are very helpful)

If you do decide to do something with the IT/PC side of things,
please feel free to let me know, and i'll try to source any products
at trade price. I think a few others on here may also be able to help
down that line.

Regards

Geraint.

--- In ukha_d@y..., "Brian G. Reynolds"
<brian.g.reynolds@n...> wrote:
> Hi, sorry for the Off-Topic subject but I'm sure you will indulge
me.
>
> A colleague has a close relative who has Motor Neuron Disease and
is getting
> steadily worse, she is unable to speak and now unable to write so
has asked
> me if I know of any equipment, keyboard/input device etc. that
might help
> her to communicate.
>
> I am afraid my knowledge of this disease is extremely limited, I
believe
> Professor Steven Hawkin has the same disease?
>
> Hope you can help me to help my friend.
>
> Thank you,
>
> B.



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